The Spiritual Art of Raising Children with Disabilities
Format: Paperback
Book Code: J213
Pages: 192
Size: 5" x 8"
ISBN: 9780817017446
PubDate: 2014
Publisher: JUDSON PRESS

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Web Price: $13.59

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2015 Eric Hoffer Award Winner in the Spirituality Category

2015 Illumination Award winner in the Spirituality category

A Peek Inside - Introduction

Book Video: JP Behind the Book: The Spiritual Art of Raising Children with Disabilities

Podcast:: Wonderfully Made Radio Station July 2015

Read Kathy's article "Inclusion, Family Style" featured in Exceptional Parent Magazine February 2014.

Read "Transformed by Invitation" written by Kathy for Exceptional Parent Magazine December 2013.

 

Are you there, God? You have to show me how to raise this child. Because the skills I've learned over the years just aren't working here. I'm helpless, Lord. I can't do this on my own!

Statistics from the U.S. Census Bureau report that 2.8 million children in the United States have a disability. That means more than 5 million parents, grandparents, and caregivers have probably offered up a prayer like this. Raising a child with a disability is hard work. Where do you go for solace? For rest, refreshment and renewed joy? We know where to go for our kids, but where do we go for ourselves?

Author Kathleen Deyer Bolduc knows these feelings from experience. She and her son navigated through his childhood and now approach yet another new life phase -- adulthood -- and all that entails. In The Spiritual Art of Raising Children with Disabilities, Bolduc uses the metaphor of the mosaic to life as parents of children with disabilities. How do you rearrange the fragmented and chaotic pieces of your family into a perfectly whole and beautiful work of art? Readers are walked through the process using the spiritual disciplines to help you recognize God's presence in your life and regain the balance we all need.

In this book, writer, parent, and spiritual director Kathleen Deyer Bolduc -- with honesty and humor, wisdom and wit -- invites the caregivers of children with disabilities to steep themselves in Scripture and self-reflection.

Key features:

  • Provides a unique perspective of a parent raising a child with disabilities -- and dealing with it through faith and spiritual direction.
  • Powerful, insightful, faith-inspired stories of other families who are walking similar paths.
  • Exercises at the end of each chapter allow readers to reflect to find the beauty in the pieces of their mosaic.

 


Editorial Reviews:

"Through personal story, insightful poetry and creative exercises, The Spiritual Art of Raising Children with Disabilities is a mentoring, caring and practical friend for the parent of faith. It offers hope in healing and encourages us to develop a truly loving and rejuvenating relationship with God and with ourselves that we may be able to celebrate this challenging but truly special role we play as special needs parents."— Kelli Ra Anderson blog. Click here to read the entire review.

"If you are the parent of a child with disabilities and you don’t know where to go with your faith or wonder whether you even have faith in God anymore, I highly recommend The Spiritual Art of Raising Children with Disabilities." —The Network, Christian Reformed Church of North America

"The Spiritual Art of Raising Children with Disabilities is a book for parents, but it isn’t a how-to parenting book. Instead, this is about putting the pieces of your life back together and seeing what beauty God can create from it. This book will especially appeal to those who are more contemplative and reflective (or those who want to be!). She shares her stories, the stories of many others, quotes from her favorite books, and even poetry. All these work together to achieve her goal of creating a beautiful mosaic to inspire parents to reflect on God’s work in their lives."—from Impact blog. Read the entire review here

"If you are the parent of a child with disabilities and you don’t know where to go with your faith or wonder whether you even have faith in God anymore, I highly recommend The Spiritual Art of Raising Children with Disabilities." —Rev. Mark Stephenson, Director, Disability Concerns, Christian Reformed Church

“A beautiful book born of the brokenness of life and of the grace that is found there. Drawing on her own experience raising a child with disabilities and sharing the stories of other parents who have walked similar paths, Kathy Bolduc demonstrates what is possible when we pay attention to God's presence in the midst of it all, with questions to ponder and reflections to consider along the way.” —Curtis Ramsey-Lucas, Executive Editor, The Christian Citizen, Steering Committee, Interfaith Disability Advocacy Coalition

"In this valuable book, author Kathleen Deyer Bolduc becomes your compassionate but clear-eyed companion, sharing her personal experience and perspective, as well as those of others. She explains how, with God's help, people just like you have been able to address the challenges of disability. Steeped in practical, Spirit-filled wisdom, let this book renew and revive your spirit." —Mark I. Pinsky, Amazing Gifts: Stories of Faith, Disability, and Inclusion

"Sharing her experiences as a parent of a son with autism, Kathleen Deyer Boldoc brings authenticity, inspiration, and discernment to this work. Writing in a conversational style, she allows the reader an intimate glimpse of real people as she walks alongside other parents as they share times of questioning, grief, and anger, wondering where the hand of God is and finding it as they engage in the practice of spiritual disciplines.  This book provides valuable spiritual insights for parents. It is also helpful to clergy, spiritual directors, churches ministering to families, and other service organizations privileged to provide space for grace to parents of children with special needs and catastrophic illnesses." —Rev. Betty Wright-Riggins, former speech pathologist, school administrator, and consultant for students with special needs; founder and principal of TrustOne, a ministry of spiritual direction and coaching

“Parents of children with special needs often experience isolation and frustration as they wrestle with the unique challenges that come with loving and raising their children. Kathleen Deyer Bolduc gives voice to the thoughts and feelings that many of these parents find difficult to express, reminding them that they are not alone in the mix of emotions stirred by parenting a special-needs child. Yet she also offers spiritual direction to help caregivers tap into the deep resources of God’s love and provision to find healing, joy, and sustenance for the journey. Not only parents, but extended family, friends, and fellow church members will discover insight into the blessings and trials of parenting a special needs child.” —Jason D. Whitt, PhD, Associate Director, Institute for Faith and Learning, Baylor University

“As a parent of a child with disabilities and of three children without disabilities, I struggled for years with guilt over taking time for myself. I felt that I was being selfish for wanting to do anything by or for myself when the kids had so many pressing needs. Eventually, though, I learned that I can't serve others or God unless my own cup is full. The Spiritual Art of Raising Children with Disabilities offers life-giving suggestions for connecting with God amid the everyday, moment-to-moment challenges and joys of living with disabilities. The stories shared within are real, honest, life-affirming, and spirit-nurturing. It feels good to connect with others who have similar thoughts and concerns and to feel peace that God is with us every step of the journey. Kathleen Bolduc offers us many ways to connect with and rest in our loving God, who will fill our cups to overflowing if we but let him.” —Victoria McGoey, parent

“Once again Kathy Bolduc, through her bold honesty and earthy faith-filled insights, lights the way for those seeking understanding of people so often misunderstood. An alternative construct is offered—igniting spiritual awareness that is essential for everyone, and indispensable for parents of children with disabilities. For allies of people with disabilities and their families, Kathy’s book provides an unvarnished glimpse of struggles and dilemmas of everyday life—confronting fundamental questions that the secular world leaves unanswered. Readers hungry for a fresh and enduring perspective will be well fed.” — Milton Tyree, Disability Concerns Consultant, Presbyterian Church (U.S.A.)

The Spiritual Art of Raising Children with Disabilities is a well-written, well-researched resource for parents seeking or trying to rediscover God in the fray of raising children with disabilities. Bolduc takes her readers on a journey from a place of despair and grief to a God-filled place where hope is blooming. The tools she provides parents are simple but profound: Scriptures viewed a new way, thoughtful exercises for reflection, a variety of ways to pray, and most important of all, stories from other parents raising children with disabilities.

The author's use of story and vivid visual imagery make this book a joy to read and work with. Someone parenting a child with a disability will immediately recognize themselves in the stories shared. This emotional recognition makes learning how other parents found and leaned on God seem like something they can accomplish, too. I highly recommend this book!” —Rev. Lynda Bigler, Chair, United Church of Christ, Disability Ministries

“This book cannot fail to go straight to the heart of any parent of a child with a disability. As a mother of two such special ones, I read this book in a few evenings -- with a diminishing box of Kleenex at my side! I received my copy of "The Spiritual Art of Raising Children with Disabilities" as a first-read giveaway, and I admit that when it arrived in the mail I had misgivings as to whether or not I was going to like it. The author is a protestant, the publishing house Baptist, and myself a devout Catholic. Thus I feared there would be elements which clashed with my own faith. But once I started reading it, I realized that this is a book deeply imbued with an undeniable spirit of trust in God's love and providence, and I would not hesitate to recommend it to anyone searching for peace and acceptance in the heartbreak and struggles of raising a handicapped child.” —Susan Peek, Goodreads reviewer

“Oh where do I start? I expected a technical how-to book and found a true blessing! Honestly, I found I couldn't read through this book quickly like I do a novel. I had to take it in small doses because of the emotions the stories and reflections stirred within me. I never expected to see myself in those pages, or read in print my innermost thoughts and desires as it relates to my autistic son and our family. The greatest revelation was that every emotion (and there are many) I feel on my personal journey are normal (Halleluiah! I'm not a bad person for having felt anger) and part of the process of acceptance we all hope to achieve as parents of special kids.”—Sandy, Goodreads reviewer

"In The Spiritual Art of Raising Children with Disabilities, Bolduc invites the reader on a journey of acceptance and grace. Using her own experience raising a son with autism, she writes from a place of understanding, really knowing the fears and frustrations of this life. She invites you to see beauty in unexpected places and to be joyful instead of bitter. While this book is intended to inspire a specific audience, anyone living through difficult circumstances may find this book helpful.--as reviewed by www.luxuryreading.com

Awards:

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illum

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